So, we’re one week into therapy, and overall, things were not as awesome as I had hoped they’d be.
So far, we’re only seeing one person: Pam, an infant development specialist, i.e. a teacher. I’m not sure if that means an early childhood educator or what, but they refer to her as a teacher and a IDS interchangeably. Whatever she actually is, I’m gonna roll with it.
We had our first appointment on Wednesday, and I LOVE her. She’s awesome with Scarlett. For the first time EVER, Scarlett was immediately willing to play with another human being without me being right there. Girl usually takes weeks to warm up to people— not so with Pam. Right off the bat, Pam was down on the floor with her, jumping around, chasing S around the room as she walked…she’s awesome, I can already tell. Scarlett was so excited to play, and she was willing to try everything Pam got out for at least a little while.
That being said, Pam asked why our behavioral therapist had kind of ruled out autism, and so I told her, and she just kind of gave me the look. She said that obviously it’s still early and she doesn’t know S as well as the other therapist, but at this point, she sees enough things that are concerning to be unable to rule it out at this point. She said that eventually, she’d probably like to see S evaluated at the Mind Institute…which apparently is UC Davis’ neurodevelopmental clinic that specializes in things like autism, ADHD, and other things like that. I guess they have really in depth evaluation teams and are the people to see if you’re suspecting anything…so, I’ll give it another few weeks and if she still feels the same, I’ll go ahead and schedule that appointment. So, overall, I love our therapist, but am struggling with the things she said.
I’m feeling a lot of different things about the fact that autism is back on the table, if I’m being honest (even though it was never definitively off the table). I don’t even know that I could say what every emotion is, really, because there’s such a mix of them. Above everything else, however, I’m just feeling grateful that we seem to have caught whatever this is as early as we could’ve…because everybody in these fields knows that early intervention is key, and I really couldn’t have gotten Scarlett in for services any sooner than I did.
I’m still most concerned at this point about her feeding. She seems to have reverted quite a lot, in that she doesn’t ever want to touch food any more, unless it’s something simple like a cracker or goldfish. As soon as you give the girl pasta or something, it’s like she has no hands, because she refuses to touch anything. She also still won’t drink more than a sip or two of anything at a time, and even that is a battle. She just lets her jaw hang open and let’s everything fall out. It’s so frustrating. We’re supposed to be getting in for an evaluation with a feeding therapist sometime at the beginning of October, but I still haven’t heard from the therapist to schedule the evaluation, so hopefully that call will come this week. No word on the OT or PT, though, but I’m less worried about those right now.
On this life side of things, we finally move into our house tomorrow! It has been a VERY long five weeks, and while I am very grateful for everything my parents have done to help us out, I am very ready to get out of their hair (and I know they’re feeling the same about us!).